Families of children and young people receiving care for aortopathy at Great Ormond Street Hospital are invited to a dedicated patient and family day. This event is designed to support those living with a diagnosis, whether newly identified or long-standing.
The day will include talks from healthcare professionals, question and answer sessions, and guidance tailored to families. Topics covered include an overview of aortopathies, psychology, physiotherapy, patient and parent experience, transition to adult care, Marfan syndrome, Loeys-Dietz syndrome, vascular Ehlers-Danlos syndrome, and an expert panel with Q&A. There will be time to meet other families in a relaxed environment and to share experiences. Activities and games will be available throughout the day for children and young people.
Places are limited, so early booking is recommended. A parent or guardian must accompany any patient under 16.
