Supporting you on your aortic dissection journey

A free online resource for people with, or at risk of aortic dissection and their families.

Made for you

These resources have been made specifically for patients and their families, with all medical jargon explained. Making this clear for those newly diagnosed as well as those looking for specific advice.

Learn about subjects relevant to your treatment, or dip in and out of topics that interest you.

 

Trusted information

These resources have been created by patients and their families, in partnership with trained medical professionals, often leaders in their field. These experts share their knowledge on everything you need to know – from symptoms and diagnosis, to treatments and the future.

A smartphone screen displays a webpage from The Aortic Dissection Charitable Trust

Supporting you on your aortic dissection journey

A free online resource for people with, or at risk of aortic dissection and their families.

A smartphone screen displays a webpage from The Aortic Dissection Charitable Trust

Made for you

These resources have been made specifically for patients and their families, with all medical jargon explained. Making this clear for those newly diagnosed as well as those looking for specific advice.

Learn about subjects relevant to your treatment, or dip in and out of topics that interest you.

Trusted information

These resources have been created by patients and their families, in partnership with trained medical professionals, often leaders in their field. These experts share their knowledge on everything you need to know – from symptoms and diagnosis, treatments and the future.

Resources include:

Patient Resource
Living with aortic dissection - advice for patients

Living with aortic dissection

Bob Harris Aortic patients chat candidly about how the condition has impacted them and their families. Along with medical advice from Dr Bejal Pandya of Barts Heart Centre London.

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Free
A patient resource image titled "Genetic testing for Aortic Dissection," featuring a doctor smiling as he speaks with a young boy and his father in a medical setting. The image conveys a positive interaction, suggesting a discussion about the genetic aspects of aortic dissection and testing options. The resource is created in partnership with Liverpool Aortovascular Hub, aiming to provide information and guidance for families considering genetic testing related to aortic dissection risk factors.

Genetic testing for aortic dissection

Genetics testing expert presentation and advice by Dr Victoria McKay followed by question-and-answers often asked by aortic patients and their families.

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Free
A patient resource image titled "Insurance Advice," featuring a joyful family posing together on a sunny beach. The group, including children and adults, raises their arms in celebration, symbolizing a carefree and happy moment. The image illustrates the importance of having proper insurance to enjoy such moments without worry. The resource is created in partnership with The British Insurance Brokers' Association, providing guidance for aortic dissection patients and their families on obtaining appropriate insurance coverage.

Insurance Advice

Empowering aortic dissection survivors with the knowledge and tools to navigate the complexities of insurance, ensuring peace of mind and a clear path forward.

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Free
Pregnancy Aortic Dissection

Family Planning and Pregnancy

Family planning, pregnancy risks, and postpartum care for women with aortic dissection, with expert advice to ensure safety for both mother and baby.

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Free
A patient resource image titled "Psychological Impacts of Aortic Dissection," featuring a man seated on a couch, deep in thought with his hands clasped in front of his face. The expression suggests concern or emotional distress. The image highlights the mental health challenges faced by individuals affected by aortic dissection. It references a partnership with Liverpool Heart and Chest Hospital, indicating the availability of resources and support for patients dealing with the psychological effects of the condition.

Psychological Impacts of Aortic Dissection

Hear from patients and families about the emotional toll of aortic dissection, offering personal insights into trauma, resilience, and recovery.

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Free
Managing Blood Pressure for Aortic Dissection Patients with Barts Heart Centre

Managing Blood Pressure for Patients

Expert-led guidance and practical tools for managing blood pressure for those with aortic dissection or at risk of aortic disease.

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Hear from patients

Patients share their perspectives and experiences of life with AD, the treatments and procedures they’ve faced and ask the questions they have always wanted answering.

Patient talking about their aortic dissection experience
Aortic dissection patient talks about living with AD
Marfan syndrome patient living with aortic dissection

Thank you so much. I very much see this as part of the healing process!

Andrew

Type A patient

Thank you. It’s good to know there’s people out there fighting for us!

Diane

Type B patient

Living with aortic dissection - advice for patients

Living with Aortic Dissection

An open booklet titled "Aortic Dissection: Field Guide for Primary Care" from The Aortic Dissection Charitable Trust is displayed. The guide aims to ensure that everyone with aortic dissection has the opportunity to live a better quality of life. The pages provide detailed information on the condition, including a diagram explaining the types of aortic dissection.

Field guide for Primary Care

Aortic Dissection Charitable Trust supporting relatives and families
Aortic Dissection Charitable Trust supporting nursing teams
Aortic Dissection Charitable Trust Emergency Departments
The Aortic Dissection Charity registered fundraising regulator
AMRC member logo

Privacy Policy  |  Accessibility

The Aortic Dissection Charitable Trust
Registered charity in England & Wales No. 1191420
Registered charity in Scotland No. SC051517

PO Box 812, Hope Valley, Chesterfield S40 9QY

© 2024 All Rights Reserved. This website and its content are licensed under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 International License.

The information and materials on this site are for general information purposes only. This site is not designed to provide individual medical advice, diagnosis or treatment. If you have any concerns, please speak to your GP. If you believe you have a medical emergency, call 999 immediately.