Aortic Dissection Awareness Day

September 19th

The global day for rare aortic diseases.

Aortic Dissection Awareness Day UK & Ireland

September 19

The cornerstone of global aortic awareness

September 19th marks Aortic Dissection Awareness Day every year. Originally created for rare aortic diseases, including dissection by its founder, Timo Söderlund (a type A dissection patient in Sweden in 2016), the day has become a global movement.

It spearheads patient advocacy and has encouraged countless medical centres to run awareness activities and events throughout the week of the 19th. Some, such as the Marfan Foundation who are the custodians of this awareness day, are now running events throughout the entire month of September.

Vascular Disease Awareness Month also falls in September, so it is a very important month of the year for aortic diseases.

Why is aortic dissection awareness day important?

Aortic dissection is the most common aortic emergency with 70 people per week suffering from the condition in the UK and Ireland. Type A dissection has a 2% mortality per hour within the first 24 hours and acute type B dissection carries a mortality rate of up to 10% over 30 days. Over 2,000 patients lose their lives to aortic dissection each year in the UK and Ireland. More needs to be done to raise awareness and elevate the profile of this preventable condition. Learn more about aortic dissection.

Why the snow leopard represents aortic disease

The snow leopard mostly lives a solitary life and is typically active during the early hours of the morning, making them very hard to find. These beautiful cats are unable to roar like their larger cousins due to their unique physiology. For this reason, they are often named, The Silent Killer, which aortic dissection is also referred to.

Since 1986, the International Union for Conservation of Nature (IUCN) designated snow leopards as endangered and they have long been considered a rare species. Like this majestic creature, aortic dissection is considered rare.

However, after years of campaigning, awareness, and education, 2016 was a landmark year for the snow leopard. It was the year when the IUCN reclassified them as “vulnerable”, meaning the risk of extinction is less urgent. This should give us all hope.

It demonstrates that, with targeted education, research, and policy change, we, too, can change the tide on aortic dissection and potentially make it less of the time-critical, silent killer it is today. With greater understanding, research, and resources, we can hopefully reduce misdiagnoses, lessen its impact on patients, and prevent others from suffering from this condition.

The power of persistent awareness should never be underestimated.

Notable people who have been impacted by aortic dissection

The first recorded case of aortic dissection was in the autopsy of King George II in 1760. Michael DeBakey, a cardiovascular surgeon at Texas Medical Centre who pioneered the surgical treatment and classification for aortic dissection, suffered from the condition in his later years. At the age of 98, he was the oldest patient to undergo the procedure, which allowed him to live a further two years.

Others include American actors John Ritter, Lucille Ball, Alan Thicke, playwright Jonathan Larson, diplomat Richard Holbrooke, Japanese actor Hiromi Tsuru, manga artist Kentaro Miura, and Depeche Mode’s keyboardist Andy Fletcher, all of whom died suddenly and unacceptably from aortic dissections.

But there have also been some notable survivors of this condition. While this is by no means an exhaustive list, some include New Zealand cricketer Chris Cairns, Judas Priest’s guitarist Richie Faulkner, BBC radio presenter Bob Harris, and former English footballer Steve Perryman.

Why you should participate in Aortic Dissection Awareness Day

Aortic Dissection Awareness Day is an ideal time to increase public awareness of this poorly acknowledged healthcare disaster and to show solidarity and support for the thousands of patients and their loved ones who have endured the long-term physical and mental consequences of this disease.

It is a great opportunity to remind the public, media, national healthcare authorities and providers, as well as healthcare professionals, policymakers, and the government that there is an urgent need to improve the education, diagnosis, and long-term care of those with, and at risk of, aortic dissection.

How to be involved in Aortic Awareness Day

Post on social media

Share information about this condition to help spread awareness using the hashtags #AorticDissection, #AortaEd or #AortaSupporta tagging in @AorticDissectCT.

Sign the petition

Sign our petition calling for The implementation of A&E diagnostics, education & policy change for Aortic Dissection and share the link with your colleagues, relatives, friends, and anyone who should be informed about the aortic disease.

Media coverage

Use your network and the network of your colleagues, friends or family to have your story and awareness activity covered in the press. Contact us for an aortic dissection awareness day template press release and help with contacting the media.

Plan a fundraising event

The Aortic Dissection Charitable Trust is wholly dependent on money raised through donations and fundraising. All money raised goes directly into developing our education resources, such as our AortaEd learning platform and research funding awards. Perhaps organise a music performance, gala dinner, book sale, #TeamAorta 5k run or cycling event – the possibilities to get involved are endless. Your fundraising event will help us continue our vital work.

Meet aortic patients and families

Aortic Dissection Awareness Day is an opportunity to create a community for people who have been impacted and/or care about aortic disease. Together, we celebrate survivors, remember those lost, and share the latest crucial lifesaving information to reach people at risk of aortic disease.

Hold an education event

Organise a conference, symposia, round-table discussion, webinar, Reddit AMA, Facebook Live etc., to share the latest aortic research and offer special educational aortic dissection training for staff. We can help by providing content, resources, patient speakers, and aortic experts.

Make a commitment to love your aorta

Many lifestyle changes can be made to improve the health of our aortas:

  • Regular physical activity can help maintain healthy blood pressure.
  • Eating a healthy, balanced diet helps to keep our weight under control and reduces cholesterol levels.
  • Smoking is the worst enemy of our aortas and every other organ in our body.

So, why not use Aortic Dissection Awareness Day to kickstart a healthier lifestyle and spread the word about looking after our aorta?

Aortic Dissection Awareness September 2022

As the leading voice for medical professionals interested in this condition and UK & Irish patients and their families impacted by it, we continue our efforts to educate, improve research efforts, and change national healthcare policy.

2nd September

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9:00am – 6:00pm

Royal College of Surgeons in Ireland, Dublin

Irish Aortic Dissection Symposium

Healthcare professionals and aortic industry event

3rd September

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9:00am – 6:00pm

The Belfry, Sutton Coldfield, UK

9th Annual Meeting Of UK-AS (Aortic Society)

Healthcare professionals event

9th September

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10:00am – 12:00pm

Virtual

Could it be …. Aortic Dissection?

West Yorkshire Health and Care Partnership, ACP Education event

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1:00pm – 6:00pm

St Bartholomew's Hospital, London EC1A 7BE, UK

London Region NHS AAD Toolkit Implementation

Patients, families and healthcare professionals event

16th September

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7:00pm-11:00pm

Bridgwater, TA6 3NZ

An Evening with Spurs Legends – Charity Fundraiser

Open to the general public

19th September

Aortic Dissection Awareness Day UK & Ireland 2022

26th September

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7:30pm - 9:00pm

Virtual

The Importance of Aortic Dissection Research

Patients, families, researchers and healthcare professionals event

29th-30th September

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9:00am - 3:00pm

Virtual

Addressing the Cardiovascular Disease Gap in Primary Care

Healthcare professional event

Other Featured AD Awareness Events

Some of the other open access highlights coming over Aortic Dissection Awareness Month.

1st September

Paris, France

7th GenTAC Aortic Summit

The Marfan Foundation’s Science in Paris

5th-6th September

Dublin, Ireland

Exploring the novel horizons to cure Cardiac disorders

3rd Global Summit on Cardiology

8th-9th September

Munich, Germany

International Conference on Cardiology and Vascular Imaging

9th-10th September

Mexico City, Mexico

ACC Latin America 2022 Together With CardioAcademic

11th-13th September

Barcelona, Spain

Interdisciplinary Endovascular Aortic Symposium

12th-13th September

Bologna, Italy

Heart Surgery Symposium – Focus on Aortic Diseases

12th-14th September

Barbican, York, UK

British & Irish Hypertension Society 2022 Annual Scientific Meeting

14th-15th September

Chicago, USA

Cardiology World Conference

18th-24th September

California, Cleveland and Texas, USA

The John Ritter Foundation Patient Symposium Week

The Aortic Dissection Charitable Trust
Registered charity in the UK No. 1191420
Registered charity in Scotland No. SC051517

PO Box 812, Hope Valley, Chesterfield S40 9QY

© 2022 All Rights Reserved

Donate to Aortic Dissection Charitable Trust

Donations securely processed by the

Charities Trust working with The Aortic Dissection Charitable Trust

The information and materials on this site are for general information purposes only. This site is not designed to provide individual medical advice, diagnosis or treatment. If you have any concerns, please speak to your GP. If you believe you have a medical emergency, call 999 immediately.

Donate to Aortic Dissection Charitable Trust

Donations securely processed by the

Charities Trust working with The Aortic Dissection Charitable Trust

The information and materials on this site are for general information purposes only. This site is not designed to provide individual medical advice, diagnosis or treatment. If you have any concerns, please speak to your GP. If you believe you have a medical emergency, call 999 immediately.

The Aortic Dissection Charitable Trust
Registered charity in the UK No. 1191420
Registered charity in Scotland No. SC051517
PO Box 812, Hope Valley, Chesterfield S40 9QY
© 2022 All Rights Reserved