The Aortic Dissection Charitable Trust and the Royal College of Emergency Medicine brought clinicians, researchers and patients together to examine why aortic dissection is still missed and how new guidance, research and better systems can improve diagnosis.
ITV Granada has highlighted the death of Paula Ivers, whose aortic dissection was not diagnosed when she attended hospital with chest pain. Her story is another reminder that missed and delayed diagnosis of aortic dissection remains an ongoing challenge, and that the emergency pathway still needs to improve.
The charity joined healthcare leaders, policymakers and patient advocates to discuss the future of healthcare in Ireland and the role patients can play in creating safer, more effective services.
September 2026 brought our community together to raise awareness, strengthen patient care, influence policy and keep aortic dissection firmly on the national agenda.
New funding will help South Tees Hospitals NHS Foundation Trust build a sustainable specialist service for people living with thoracic aortic disease across the North East of England.
Three days of cycling in Mallorca have raised funds to support specialist aortic nursing and improve care for patients and families.
As Aortic Dissection Awareness Month begins, a new podcast episode explores who is affected by aortic dissection and why assumptions about age, sex and ethnicity can matter.
This newly published paper involving the charity proposes a different way of thinking about emergency treatment for acute type A aortic dissection, asking whether the entire pathway from hospital arrival to surgery can be organised around what matters most, time.
James’ story highlights why every patient who has undergone aortic surgery should understand their individual risk of infective endocarditis before dental treatment.
As patients increasingly turn from search engines to AI assistants for health questions, the charity is helping ensure trusted aortic dissection information is easy to find when it is needed most.
From genetic screening and blood pressure management to service development and research, our annual aortic nurses meeting showcased the expanding role of specialist nurses in aortic care.
Leading experts, patients and families gathered at Liverpool Aortic Week to share knowledge, strengthen partnerships and advance care for aortic disease.
Rachel’s interview on BBC Tees highlights the life saving importance of understanding inherited risk and speaking up about family history of aortic disease.
An inspiring evening celebrating collaboration, patient voices and the growing impact of research in improving outcomes for people affected by aortic dissection.
A powerful month of running saw supporters honour loved ones, raise awareness of aortic dissection, and fund vital patient support and research.
Sleep disturbance affects most survivors of aortic dissection, yet it remains an overlooked part of recovery that can significantly impact quality of life.
A 20,000km, nine-month cycling journey from Chamonix to Tokyo is underway, raising vital awareness of aortic dissection after a devastating family loss.
The Aortic Dissection Charitable Trust opened the initial consultation for the first dedicated James Lind Alliance Priority Setting Partnership for aortic dissection at the SCTS meeting in Belfast.
Syndromic causes of aortopathy and aortic dissection, exploring key insights from a recent clinical webinar and new research on exercise in Marfan syndrome.
GOSH Aortopathy Family Day and practical guidance on how parents can talk openly and confidently to children about inherited aortic conditions and genetic testing.
A global aortic tissue biobank designed to accelerate research and improve outcomes for people at risk of life threatening aortic disease.
Help shape the future of women’s cardiovascular health by sharing your experiences in a national research survey.
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The Aortic Dissection Charitable Trust
Registered charity in England & Wales No. 1191420
Registered charity in Scotland No. SC051517
PO Box 812, Hope Valley, Chesterfield S40 9QY
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