Research Priorities for Aortic Dissection

Why this work is needed

Aortic dissection is a life-threatening condition. Many people have questions about how it is identified, diagnosed, treated, and managed over time. Doctors and researchers have many questions too. We want to collect all these questions and, through a robust process, select the ones that matter most. This will guide future research and help improve care.

Scope

We plan to look at all parts of care for people who have, or may have, an aortic dissection. This includes:

• How to understand risk and prevent aortic dissection
• How to diagnose acute aortic dissection
• Emergency care, treatments, and care around surgery
• Recovery, long-term check-ups, and support for daily life

Call for steering group members

We are creating our steering group to help guide the project. We already have some members, but we need more to make sure we have enough people with different experiences. We would like to invite:

• Vascular surgeons
• Cardiothoracic surgeons
• Emergency physicians
• Paramedics and first responders (including community first responders)
• Radiologists
• Clinical geneticists, paediatricians, and clinicians with an interest in syndromic or inherited aortic conditions
• Obstetricians and maternity specialists with an interest in aortic dissection
• People with lived experience of aortic dissection, including patients and their families

Steering group members will meet online (1.5-2 hours) at least once a month and help guide the overall direction of the project and we will also aim to meet in person at least once during the project. You may also be required to do some work between meetings (2-3 hours across the month). We expect the whole project to last between 12 and 18 months.

Call for wider participation

How to get involved

To express your interest in joining the steering group or to take part in the surveys, please follow the link: