Help & Resources
Resources for Patients and Professionals
Whether you’re a patient, family member, or healthcare professional, we offer the resources, guidance, and support needed across diagnosis, treatment, and aftercare. Our expert tools and stories help you navigate aortic dissection with confidence.
Patient Resources
Guiding you on your journey following an aortic dissection. Free online resources for families and those who have or are at risk of aortic dissection.
Bereavement
If you’ve lost a loved one to aortic dissection, this guide offers compassionate support and practical advice to help you navigate the grieving process.
Medic Resources
Free open access AortaEd resources for healthcare professionals interested in expanding their knowledge and skills in this crucial area.
Struggling with the Emotional Impact of Aortic Dissection?
Explore our in-depth interviews on the Psychological Impacts of Aortic Dissection. Gain expert insights and hear real patient stories to better understand loss, anxiety, PTSD, and the path to recovery. Learn practical coping strategies and find the support you need to move forward.
Frequently Asked Questions
Field Guide for Your GP
This document and video guide, created in collaboration with the Primary Care Cardiovascular Society (PCCS), aims to ensure consistent, high-quality care for aortic dissection patients. By sharing this with your GP, you can help promote better diagnosis, treatment, and aftercare for all those affected.
Martin
In March 2020, Martin’s life took an unexpected turn during a routine run when he experienced a sudden aortic dissection. Thanks to the quick thinking of a consultant and the skilled surgical team at Wythenshawe Hospital, Martin’s life was saved. His recovery has been nothing short of remarkable, with Martin channelling his energy into regaining his fitness and raising awareness of aortic dissection.
Recently, Martin and his wife Fiona completed an incredible challenge: walking the entire 630-mile South West Coast Path. Their trek, named “Walking in My Shoes,” was both a personal triumph and a mission to raise awareness and funds for aortic dissection research. The journey was demanding but deeply rewarding, as they inspired others and helped shine a light on this often misdiagnosed condition. Through their efforts, they have not only raised vital funds but also offered hope to those affected by aortic dissection.
“To be told that something had happened that was worse than a heart attack was simply staggering. I think it’s really important for people to be aware of the clinical process and the good practices that I experienced.”
How you can help
Campaign
Join us in transforming the health system to better support patients and families. By listening to their needs and amplifying their voices, we advocate for the changes they deserve. Contact us for more information.
Donate
Your donation helps us continue our essential work with patients across the country, giving them hope and a reason to believe in a brighter future.
Raise Money
Whether you walk, swim, bake, or sing, however you choose to raise money helps us support patients and make changes to the health system. Get inspired today!
Volunteer
As a volunteer, you can make a significant impact on the community through support, research, and education. Contact us for more information.
Donate £50 and help support our research into preventing more aortic dissection related deaths
Your donation helps to fund our aortic dissection projects, which support those with and at risk of the condition.
The Aortic Dissection Charitable Trust
Registered charity in the England & Wales No. 1191420
Registered charity in Scotland No. SC051517
PO Box 812, Hope Valley, Chesterfield S40 9QY
The information and materials on this site are for general information purposes only. This site is not designed to provide individual medical advice, diagnosis or treatment. If you have any concerns, please speak to your GP. If you believe you have a medical emergency, call 999 immediately.