Aortic dissection care is evolving, with task forces, research, and advocacy driving better outcomes for patients in the UK and Ireland.
Aortic Dissection Patient Advocacy
The Aortic Dissection Charitable Trust advocates for patients, influencing UK and Ireland healthcare policies to safeguard rights and improve care for those with aortic dissection.
Celebrating The Marfan Community
The Marfan syndrome community unites to share stories, raise awareness, and support those living with this genetic condition.
Modernising the NHS for Better Patient Care
The NHS is undergoing major reforms to bring care closer to home, improve digital services, and prioritise prevention, ensuring a healthier future for all.
Patient Support Groups in Aortic Disease Care
Patient support groups play a vital role in improving rare disease care through advocacy, collaboration, and support for patients and their families.
Bringing the Patient Voice into Medical Education
Patients are shaping medical education by sharing their experiences, fostering empathy, and preparing future doctors for patient-centred care.
Managing Blood Pressure
Expert insights and practical advice on managing blood pressure for aortic dissection patients, including a webinar and comprehensive guide.
The Power of the Patients’ Voice
TADCT’s presentation at EACTS showcased the importance of patient voices in improving care and outcomes for aortic dissection patients.
The Overlooked Impact of Aortic Dissection on Mental Health
The profound psychological impact of aortic dissection – discover coping strategies through expert insights and patient stories.
Aortic Dissection Awareness Day 2024
September marked significant progress in aortic disease awareness, with innovative outreach, collaborative events, and groundbreaking research driving early diagnosis and improved care.
Celebrating Emily’s BBC Make A Difference Award
Emily Mickelborough has spoken to thousands, raising crucial awareness of aortic dissection through her year-long fundraising journey.
Like-minded Charities Host Marfan Symposium
The Marfan International Patient Symposium in London united patients, families, and experts to advance advocacy and improve lives with genetic conditions.
Empowering Patient Voices in Research
Patients are increasingly co-leading research projects, fostering a more inclusive and effective approach to healthcare innovation.
Solo Kayak UK Challenge for Aortic Dissection
Driven by personal loss, Michael Lambert finishes an ambitious solo kayak journey around the UK. His mission: attempt to break a Guinness World Record and spotlight the critical need for aortic dissection awareness and research.
Highlighting Loeys-Dietz Syndrome and the Need for Awareness
Sharon’s tragic story highlights the urgent need for greater awareness and improved treatment pathways for Loeys-Dietz Syndrome.
Aortic Nurses Symposium 2024
Bringing together patients, nurses, and healthcare professionals to explore the vital role of aortic nurses. The event featured moving personal stories, expert-led sessions on aortic care and valuable networking opportunities.
Insights from the Surgeon on the Complexities of Aortic Surgery
Exploring the emotional depth and professional insights of cardiac surgeon Professor Mark Field on aortic surgery.
Remembering Kentaro Miura
Kentaro Miura, the creator of “Berserk,” tragically passed away from aortic dissection, a stark reminder of human vulnerability. His profound impact on manga through intricate storytelling and detailed art lives on.
Understanding Insurance Options for Aortic Dissection Patients and Families
Understanding insurance options is crucial for aortic dissection patients and families. Expert tips and resources from BIBA to help navigate these complex needs.
A Human Factors Approach to Enhancing Patient Safety in AD Diagnosis
A human factors approach in diagnosing acute aortic dissection is remodeling patient safety. With key results presented at the 2024 International Healthcare Forum.
Aortic Dissection and the Healing Power of Poetry
David Attree’s journey through aortic dissection reveals the transformative power of poetry in facing life’s gravest challenges, inspiring resilience and hope.
In Memory of Sharon Sewell. A Champion of Compassion and Courage
We are deeply saddened by the loss of Sharon Sewell, a true champion of compassion and courage. Her dedication to the aortic dissection community and her remarkable journey of resilience have touched us all.