A message of remembrance, support and hope for all those affected by aortic dissection.
Aortic Dissection Patient Advocacy
The Aortic Dissection Charitable Trust advocates for patients, influencing UK and Ireland healthcare policies to safeguard rights and improve care for those with aortic dissection.
Trustee Awarded Honorary Doctorate
Pauline Latham OBE HonDUniv has been awarded an Honorary Doctorate for her tireless work in public service and aortic dissection advocacy.
Making Patient Voices Count
The charity is working with patients and partner organisations across the UK and Ireland to improve long-term recovery and support after aortic dissection.
Aortic Dissection Awareness Day 2025
This September brought major advances in research, patient support, clinical education, and community led awareness.
A First in Specialist Nursing Role Funding
Specialist nursing roles funded for the first time to improve lifelong care and support for people living with aortic dissection across the UK.
Aortic Dissection Podcast
A new video podcast series from the Aortic Dissection Charitable Trust shares expert insights and real patient stories to support those affected by the condition.
Turning Awareness into Action
David Burgess’s sudden death from aortic dissection highlights the urgent need for awareness, early diagnosis, and dedicated support for families.
Pregnancy and Aortic Dissection
While pregnancy poses higher risks for women with heritable thoracic aortic disease, most can have safe deliveries with careful monitoring and support.
Awarded Honorary Fellowship by the Royal College of Surgeons of England
Dr John A. Elefteriades receives Honorary Fellowship from the Royal College of Surgeons of England, recognising his global impact on aortic surgery and care.
Strengthening Patient Support
The charity is partnering with the British Heart Foundation to strengthen helpline support by deepening the knowledge of their cardiac nursing team in providing support for patients affected by aortic dissection.
Aortic Nurses Symposium 2025
Championing best practice in patient care and support, the Aortic Nurses Symposium 2025 brought together experts to advance aortic nursing across the UK and Ireland.
Climbing Mountains for Aortic Dissection
Supporters climb the UK’s highest peaks to raise awareness, honour lives affected by aortic dissection, and fund essential medical research.
The Emotional Impact of Aortic Dissection
During Mental Health Awareness Week, we share powerful stories from those affected by aortic dissection to highlight the importance of emotional support.
Supporters Who Go the Extra Mile for Aortic Dissection
From charity runs to tribute events and wedding donations, our supporters show there are countless ways to help raise awareness of aortic dissection.
EARNEST Trial
A groundbreaking UK study, now open and recruiting, shaping the future of treatment for uncomplicated type B aortic dissection.
Medico-Legal Discourse in Emergency Medicine
The charity spotlighted urgent diagnostic failures at a major Royal Society of Medicine event, calling for systemic change in emergency medicine.
Travel Insurance and Aortic Dissection
Travelling with an aortic condition? Find out how to secure the right travel insurance for peace of mind before you go.
Why Aortic Dissection Patients Deserve Better
Aortic dissection care is evolving, with task forces, research, and advocacy driving better outcomes for patients in the UK and Ireland.
Celebrating The Marfan Community
The Marfan syndrome community unites to share stories, raise awareness, and support those living with this genetic condition.
Modernising the NHS for Better Patient Care
The NHS is undergoing major reforms to bring care closer to home, improve digital services, and prioritise prevention, ensuring a healthier future for all.
Patient Support Groups in Aortic Disease Care
Patient support groups play a vital role in improving rare disease care through advocacy, collaboration, and support for patients and their families.