Sharon’s tragic story highlights the urgent need for greater awareness and improved treatment pathways for Loeys-Dietz Syndrome.
Aortic Dissection Patient Advocacy
The Aortic Dissection Charitable Trust actively engages in patient advocacy, representing the voices and interests of aortic dissection patients to influence positive change in healthcare policies and services in the UK and Ireland. We strive to safeguard patients’ rights and enhance their care experience.
Aortic Nurses Symposium 2024
Bringing together patients, nurses, and healthcare professionals to explore the vital role of aortic nurses. The event featured moving personal stories, expert-led sessions on aortic care and valuable networking opportunities.
Solo Kayak UK Challenge for Aortic Dissection
Driven by personal loss, Michael Lambert completes an ambitious solo kayak journey around the UK. His mission: to break a Guinness World Record and spotlight the critical need for aortic dissection awareness and research.
Insights from the Surgeon on the Complexities of Aortic Surgery
Exploring the emotional depth and professional insights of cardiac surgeon Professor Mark Field on aortic surgery.
Remembering Kentaro Miura
Kentaro Miura, the creator of “Berserk,” tragically passed away from aortic dissection, a stark reminder of human vulnerability. His profound impact on manga through intricate storytelling and detailed art lives on.
Understanding Insurance Options for Aortic Dissection Patients and Families
Understanding insurance options is crucial for aortic dissection patients and families. Expert tips and resources from BIBA to help navigate these complex needs.
A Human Factors Approach to Enhancing Patient Safety in AD Diagnosis
A human factors approach in diagnosing acute aortic dissection is remodeling patient safety. With key results presented at the 2024 International Healthcare Forum.
Aortic Dissection and the Healing Power of Poetry
David Attree’s journey through aortic dissection reveals the transformative power of poetry in facing life’s gravest challenges, inspiring resilience and hope.
In Memory of Sharon Sewell. A Champion of Compassion and Courage
We are deeply saddened by the loss of Sharon Sewell, a true champion of compassion and courage. Her dedication to the aortic dissection community and her remarkable journey of resilience have touched us all.
Yale School of Medicine: Safety for Aortic Patients
At the Yale HVC Quality & Safety Grand Rounds, a keynote by the aortic dissection charity, hosted by Dr John Elefteriades, highlights the important role of patient-centred care and global cooperation.
Miracle Running for Aortic Awareness
Emily takes on the London Landmarks Half Marathon with Miracle the Unicorn as part of a year long challenge, for aortic dissection awareness.
The Silent Why: Navigating Loss with Purpose
Catherine Fowler and Dr John Cronin share transformative insights on aortic dissection, highlighting the power of collaborative efforts in emergency medicine and the journey through grief.
Advocacy at Major Political Party Conferences
Advocacy efforts at the Conservative Party Conference and Labour Party Conference. Insights into healthcare reforms and discussions aimed at improving conditions for individuals with aortic dissection and other long-term health conditions are explored.
Aortic Dissection Awareness Day 2023
September 2023 highlighted significant strides in aortic dissection research, community engagement, and fundraising efforts.
5K for aortic dissection
Celebrities patients and medical professionals came together in a show of unity, marking an important step towards improving diagnosis and survival rates of the condition.
A Night of Resilience and Revelry: “Alive!” Triumphs at Rockwater, Hove
Under the stars, the echoes of laughter mixed with stories of survival reminded us of life’s precious rhythm and the pure joy of being part of it.
Harnessing AI for Aortic Disease Education
AI in healthcare provides promising opportunities to enhance patient care, particularly in the realm of aortic disease. The ChatAortaAI project aims to use AI to increase awareness, improve diagnosis, and provide essential information to patients and medical professionals.
Aortic Dissection Awareness Day 2022
September 2022 highlighted significant strides in aortic dissection research, community engagement, and fundraising efforts.
Award Winning
Catherine Fowler’s relentless dedication to aortic dissection awareness and patient support leads to national recognition at the Palace of Westminster.
Aortic Dissection Awareness Day 2021
September 2021 highlighted significant strides in aortic dissection research, community engagement, and fundraising efforts.