UK Inherited Aortopathy and Arteriopathy Network Meeting 2026

Join leading specialists from across the UK for a collaborative meeting focused on improving diagnosis, research and care for people living with inherited aortic and arterial conditions.

The Aortic Dissection Charitable Trust has been supporting the growth of the UK Aortopathy and Arteriopathy Rare Disease Collaborative Network, helping bring together specialist centres to improve care, research and collaboration for people living with hereditary thoracic aortic diseases (HTADs) and other rare vascular conditions.

Supported by NHS England, the network provides a national forum to share expertise, discuss complex cases and develop best practice, ultimately improving outcomes for patients and families.

This meeting is worth 5 CPD hours. Spaces are very limited, so book your place today.

Network Meeting Programme

Morning Chair: Dr Amanda Varnava
10.00 Welcome and Introduction Dr Leema Robert, Consultant Clinical Geneticist, Guy’s and St Thomas’ Trust
10.10 Challenges for Paediatric Service Delivery Dr Elena Cervi, Consultant Cardiologist, Great Ormond Street Hospital, London
10.30 How to Manage Hypermobility Referrals Dr Fleur Van Dijk, Consultant in Clinical Genetics, London North West Healthcare Trust
10.50 Genetics Screening Negative Aortic Dissection Michael Kyriakides, Aortic Dissection Survivor and Trustee, The Aortic Dissection Charitable Trust
11.10 Refreshments and Networking
11.40 Case Presentations (focus on diagnostic dilemmas)
12.40 Lunch and Networking
13.40 Case Presentations (focus on management dilemmas)
Afternoon Chair: Dr Elena Cervi
14.40 Changes in Testing Criteria Matthew Edwards, Deputy Head, Clinical Genetics and Genomic Laboratory, Royal Brompton Hospital
15.00 Challenges of Setting up an Adult Inherited Aortopathy Service Dr Paul Clift, Consultant Cardiologist, University Hospitals Birmingham
15.20 Refreshments and Networking
15.40 FBN1 VUS Project Dr Clara Portwood, Clinical Genetics Fellow, Guy’s and St Thomas’ Trust
15.50 Decipher Cardiovascular Genetics Consortium Dr Viraj Patel, Clinical Genetics Fellow, Guy’s and St Thomas’ Trust
16.00 Bringing Genetics to the Patient Riccardo Abbasciano, Research Fellow, Imperial College London
16.10 Feedback and Close Graham Cooper, Cardiac Surgeon, Trustee, The Aortic Dissection Charitable Trust

More Upcoming Events

UK Inherited Aortopathy and Arteriopathy Network Meeting 2026

Join leading specialists from across the UK for a collaborative meeting focused on improving diagnosis, research and care for people living with inherited aortic and arterial conditions.
UK Inherited Aortopathy and Arteriopathy Network