North West Toolkit Launch

The North West event marks a turning point in aortic dissection care, uniting patients and professionals in a ground breaking initiative.

Date

November 2023

Advancing care across

the North West, Wales and the Isle of Man

In partnership with

Greater Manchester & Eastern Cheshire Strategic Clinical Networks

In the heart of North West England, a significant stride was taken in the mission to improve aortic dissection patient care. The event, organised by NHS England in collaboration with The Aortic Dissection Charitable Trust, Greater Manchester and Eastern Cheshire Strategic Clinical Network, and Northwest Coast Clinical Network, marked the launch of innovative pathways and procedures for managing acute aortic dissection. This important event, originally scheduled for September’s awareness day but rescheduled to 20 November due to industrial action, brought together patients, families, and medical professionals in a powerful show of unity and commitment to change.

A Gathering of Shared Experiences

Perhaps the most poignant aspect of the day was the rare opportunity for patients affected by aortic dissection to meet and bond. This unique gathering, a first for many, saw individuals who had often felt isolated in their journeys become lifelong friends. Their shared experiences and stories offered invaluable perspectives, not just for each other but also for the healthcare professionals in attendance.

The keynote speakers addressed the complexities of thoracic aortic dissection repair and the risks associated with aortic rupture. Their insights, along with those from representatives of Liverpool Heart and Chest Hospital NHS, Manchester University NHS, and Blackpool Teaching Hospitals NHS, stressed the critical nature of the condition and the urgency of improving care pathways.

Launch of the Acute Toolkit

The purpose of the event was the introduction of the NHS Acute Aortic Dissection Toolkit for the North West, Wales, and the Isle of Man. This toolkit promises to revolutionise the management of type A and type B aortic dissections, offering new standards for acute care and follow-up. It represents a tangible outcome of the collaborative efforts between patients, medical professionals, and healthcare leaders, aiming to increase survival rates and reduce disability from aortic dissection.

Empowering Through Improved Standards

Education and empathy were the twin themes resonating throughout the day. The presence of patients and their families brought an essential human element to the discussions, reminding everyone of the real-life implications behind medical terms and statistics. Their stories and experiences of living with aortic dissection enriched the understanding of the impact of AD on lives, serving as a powerful motivator for healthcare professionals to pursue excellence in patient care.

The discussions, expert insights, and resources provided by the toolkit empowered not just the patients and families, but also the healthcare professionals, equipping them with the knowledge and tools necessary for enhancing patient care.

Looking Ahead with Optimism

As we reflect on the success of this event, it’s clear that it marks a step change in the management of aortic dissection in the North West, Wales, and the Isle of Man. The spirit of collaboration, innovation, and compassion showcased here is a testament to the power of coming together for a common cause. The launch of the NHS Acute AD Toolkit, combined with the shared experiences and dedication of all involved, sets a promising course for the future of aortic dissection care.

In honour of Aortic Dissection Awareness Day, let us carry forward this spirit, committing to make a lasting difference in the lives of those affected by this condition. The journey ahead is filled with hope and determination, as we continue to work towards a future where aortic dissection is no longer a silent threat but a condition met with the best of medical expertise and compassionate care.

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