September marked significant progress in aortic disease awareness, with innovative outreach, collaborative events, and groundbreaking research driving early diagnosis and improved care.
Aortic Dissection Policy Change
The Aortic Dissection Charitable Trust collaborates with healthcare policymakers in the UK and Ireland to standardise diagnosis procedures for aortic dissection and ensure specialised follow-up for survivors and genetic consultations for relatives. Our focus is on consistency, access and the comprehensive care of those affected.
Like-minded Charities Host Marfan Symposium
The Marfan International Patient Symposium in London united patients, families, and experts to advance advocacy and improve lives with genetic conditions.
Updated NHS England Guidelines Enhance Genetic Screening for Aortic Disease
NHS England has revised its genetic screening guidelines to enhance the detection and management of aortic dissection. These updates aim to integrate advanced genomic testing into routine clinical practice effectively.
A Renewed Commitment and Strategic Blueprint
In a meeting with The Rt Hon Victoria Atkins MP, the Aortic Dissection Charitable Trust laid out a strategic blueprint aimed at improving care for aortic dissection patients, highlighting the need for advanced treatments and comprehensive follow-up care.
A Human Factors Approach to Enhancing Patient Safety in AD Diagnosis
A human factors approach in diagnosing acute aortic dissection is remodeling patient safety. With key results presented at the 2024 International Healthcare Forum.
SCTS Annual Meeting 2024
The SCTS annual meeting lunchbox session discussed the evolving landscape of aortic dissection care, emphasising the integration of new medical devices and the pivotal role of data in improving patient outcomes.
Strategic Advance in AD Management in Southern England
The new NHS England SOP for acute aortic dissection in the South East and South West revolutionises patient care by standardising diagnosis and treatment pathways.
North West Toolkit Launch
The North West event marks a turning point in aortic dissection care, uniting patients and professionals in a ground breaking initiative.
Celebrating Hull University Teaching Hospitals’ HSJ Award Victory
The HSJ Award triumph by Hull University Teaching Hospitals underscores their innovative strides in diagnosing thoracic aortic dissection, symbolising a milestone in patient safety and medical education.
Aortic Dissection Awareness Day 2023
September 2023 highlighted significant strides in aortic dissection research, community engagement, and fundraising efforts.
The Importance of Patient Safety
Engaging patients and their families is essential for preventing misdiagnoses, especially for severe conditions like aortic dissection that could result in fatal outcomes.
A Monumental Leap for Aortic Dissection Care in the UK
The Aortic Dissection Charitable Trust, in collaboration with the Department of Health and Social Care & NHS England, heralds a monumental leap in aortic dissection care through the approval of an innovative Elective Aortic Dissection Toolkit.
Pauline Latham MP on BBC Politics
MP Pauline Latham’s retirement marks the beginning of her intensified efforts towards aortic dissection advocacy.
Petition: The Urgent Need for Improved Diagnosis
After a tragic misdiagnosis in 2015, a mission emerged to rectify critical gaps in medical procedures through an impactful petition.
Department of Health’s Formal Call for Aortic Dissection Research
Minister’s recent formal call for aortic dissection research marks a pivotal moment for progress in diagnosis, treatment, and prevention.
Westminster Debate
Pauline Latham MP led a debate in Westminster Hall to raise awareness of aortic dissection and called for greater consistency in the diagnosis, treatment, and aftercare of the condition.
Meeting with Health Ministers Will Quince MP and Helen Whately MP
The Aortic Dissection Charitable Trust, led by Pauline Latham OBE MP, is actively shaping the future of aortic dissection policy and care in the UK through continuous dialogue and collaboration with key Health Ministers.
Aortic Dissection Awareness Day 2022
September 2022 highlighted significant strides in aortic dissection research, community engagement, and fundraising efforts.
Award Winning
Catherine Fowler’s relentless dedication to aortic dissection awareness and patient support leads to national recognition at the Palace of Westminster.
Aortic Dissection Awareness Day 2021
September 2021 highlighted significant strides in aortic dissection research, community engagement, and fundraising efforts.