Resources

We have created several resources in collaboration with our medical advisors, professional associations and patient partners. Please feel free to download, use and share these resources.

If you have suggestions for a new resource or plan to use elements of our existing resources, please get in contact so that we can support and provide guidance and tailor if needed.

Aortic Dissection Patient Resources

Patient Resources

Guiding you on your journey following an aortic dissection. Free online resources for families and those who have or are at risk of aortic dissection.

Primary Care Field Guide

Supporting multi-disciplinary teams of GPs, nurses, pharmacists & other healthcare professionals involved in cardiovascular disease care.

Aortic Dissection Charity AortaEd

HCP Resources

Free open access AortaEd resources for healthcare professionals interested in expanding their knowledge and skills in this crucial area.

Patient Stories

Pauline Latham MP OBE talks about aortic dissection education in Scotland

by BBC Radio Derby - The Ian Skye Show - 18th November 2022

Bob Harris OBE shares his experience of aortic dissection

by BBC Radio 2 - The Jeremy Vine Show - 30th April 2021

Pauline Latham MP OBE talks about her personal connection to aortic dissection

by Talkradio - The Mike Graham Show - 19th March 2021

Catherine Fowler talks about her father's aortic dissection misdiagnosis

by LBC - Nick Ferrari - 24th May 2016

Upcoming Events

Past Events

BSMS International Cardiothoracic Surgical Conference for Medical Students and Junior Doctors

1st May 2021  |  9:00-18:00 BST  |  Virtual

Educational session designed to give student and junior doctors an understanding of aortic dissection and how best to approach the condition, including a patient and relative’s perspective.

WMAS Quality Assured CPD Event

7th May 2021  |  15:00 BST  |  Virtual 

The Detectable Killer

Paramedic and pre-hospital aortic dissection education event covering an overview of the condition, key facts, symptoms, assessment and management.

SCTS Virtual Annual Meeting

9th May 2021 |  14:30 BST  |  Virtual  |  Aortic Surgery I

Acute type A aortic dissection; A National Perspective.

Presented by Graham Cooper, a trustee at The Aortic Dissection Charitable Trust.

EURORDIS Membership Meeting 2021

12th May 2021 |  10:30 and 14:00 BST  |  Virtual 

Living in a Virtual World: Online Conferences and Fundraisers

Workshop and presentation covering advice for patient organisations wishing to work with celebrities and influencers to promote their cause and maximise their profile. Lead by Catherine Fowler, a trustee and aortic dissection campaigner.

College of Paramedics National Conference

12th May 2021 |  13:15 BST  |  Virtual  |  Stream Two

Aortic dissection: the silent killer. Essential knowledge for early recognition and clinical guidance for pre-hospital clinicians.

Presented by Simon Rose MCPara, Paramedic, East of England Ambulance Service, pre-hospital education lead at The Aortic Dissection Charitable Trust.

CPD Webinar

8th June 2021 |  20:00 BST  |  Virtual

Aortic Dissection: The Detectable Killer

The charity’s collaboration with CPDme will bring an engaging educational series of webinars focusing on each aspect of the aortic dissection pathway to improve knowledge and patient outcomes.

The first of the series will be led by Simon Rose a HCPC registered Paramedic working for the East of England Ambulance Service who has trained over 500 pre-hospital clinicians on how to identify this time-critical condition.

NADMEC

19th June 2021 |  11:00 BST  |  Virtual

Meet The Experts: Aortic Dissection

This session, intended for medical students and junior clinicians, aims to teach how to recognise, diagnose and manage aortic dissections and also give advice on how best to increase the chances of gaining a training post when applying for competitive specialities.

Expert panelists include a Consultant Cardiac Surgeons, a Cardiac Trainee, a Consultant Interventional Radiologists and an Aortic Dissection Survivor. Supported by Terumo Aortic.

Luxmuralis Aortic Dissection Awareness

The Great Exhibition 2021: SCIENCE

19th-30th August  | Lichfield Cathedral, WS13 7LD, UK

TADCT collaborates with Luxmuralis to support artistic engaging education of the general public.  
A walk through the History of Science in the stunning interior of Lichfield Cathedral. Virtually every inch of the Cathedral bathed in light and full of beautiful original compositions over 12 nights in August 2021.
Aortic Dissection Charitable Trust cardiothoracic ED teams

Aortic Surgeons UK Annual Meeting

4th September

TADCT will join their partners at the Aortic Surgeons UK to update progress and plans since the launch of the UK’s AD charity in March 2021. 

Aortic Dissection Charitable Trust supporting genetic testing

Introducing the Research Advisor Group

15th September  |  7pm BST

TADCT are pleased to introduce our Research Advisory Group
Join us to:
  • hear our research mission
  • understand how our patient panel will help to shape aortic dissection research
  • contribute to our plans for a research network across the medical and charitable communities
Aortic Dissection Irish masterclass

Irish Aortic Dissection Masterclass in partnership with Cleveland Clinic

16th September | 6 pm BST (Virtual)

The teams from Cleveland Clinic, Massachusetts General Hospital, St Vincent’s University Hospital Dublin, St James’ Hospital Dublin and TADCT come together for a session discussing unusual AD presentations, imaging and surgical techniques plus more.

Accredited by the Royal College of Surgeons in Ireland.

Aortic Dissection Charitable Trust cardiothoracic ED teams

Together we are Stronger: Critical Partnerships and Projects in the Medical Community

21st September  |  8pm BST (Virtual)

The Aortic Dissection Charitable Trust joins The John Ritter Foundation during Aortic Dissection Awareness Week for an update on our education, research and aortic dissection clinical trial parternship.

Aortic Dissection Charitable Trust cardiothoracic ED teams

Advanced Aortic Dissection Clinical Care: Northern Care Alliance

1st October  |  2pm BST (Virtual)

Aortic dissection education webinar providing an overview of AD pathophysiology along with AD education with a treatment pathway perspective from the paramedic, triage nurse, emergency medicine and radiology.

Glenys Stevenson will also share her personal perspective and experience of the aortic dissection treatment pathway. The session will close following an open professional discussion and Q&A. 

The Aortic Dissection Charitable Trust present research at RCEM conference

The RCEM Annual Scientific Conference

5th-7th October

The Aortic Dissection Charitable Trust present a new study on the pathway of those who die from a misdiagnosis of acute aortic syndromes.
Aortic Dissection Charitable Trust cardiothoracic ED teams

2021 Virtual IAEM Annual Scientific Meeting

14th-15th October  |  Virtual

Continuing our mission of aortic dissection education and research for nursing, pre-hospital, Emergency Medicine trainees and consultants.

Aortic Dissection Charitable Trust cardiothoracic ED teams

County Durham and Darlington NHS Foundation Trust

14th January 2022 | Virtual

Aortic Dissection Emergency Medicine education for Durham and Darlington NHS Foundation Trust. Continuing the UK NHS trust AD education programme. Speakers include Dr Kashyapa Dissanayake, Emergency Lead Consultant, Darlington Memorial Hospital and Syed Sadeque, Consultant Cardiac Surgeon, Sheffield Teaching Hospital NHS Foundation Trust.
Aortic Dissection Charitable Trust cardiothoracic ED teams

The International Rare Disease Showcase

1st – 3rd February 2022 | Virtual

Highlighting the education and research needs for AD and the patient and families living with the condition.
Aortic Dissection Charitable Trust cardiothoracic ED teams

Parameducate AortaEd CPD event

6th March 2022 | Virtual

Parameducate is a Facebook group of over 17,000 members designed for those that work in the UK pre/out of hospital care to discuss, seek advice and share clinical experience and knowledge. This ‘Parameducate Live’ online CPD event with cover pre-hospital diagnosis and management of aortic dissection.
Aortic Dissection Charitable Trust cardiothoracic ED teams

The Great Exhibition 2022: SCIENCE

7th – 12th March 2022 | Winchester Cathedral, SO23 9LS, UK

Following the success of the TADCT collaboration with Luxmuralis to support artistic engaging education of the general public at Lichfield Cathedral, The Great Exhibition 2022: SCIENCE returns. A walk through the History of Science in the stunning interior of Winchester Cathedral. Virtually every inch of the Cathedral bathed in light and full of beautiful original compositions. Tickets on sale soon.

Paramedic Science Undergraduate Module

18th March 2022  | Swansea University

Student paramedic aortic dissection module covering an overview of the condition, key facts, symptoms, assessment and management.

Society for Acute Medicine, Annual Conference

24th-25th March 2022  | Bristol Marriott Hotel City Centre

The Society for Acute Medicine (SAM) is the national representative body for all clinicians working in Acute Medical Units, working with TADCT to promote AD education of medical, nursing and paramedical staff in acute medicine.

West Yorkshire Health and Care Partnership, ACP Education

1st April 2022  | Virtual

West Yorkshire Faculty of Advancing Practice is holding an online CPD event to explore Aortic Dissection. Priority will be given to clinicians working in Advancing Practice roles across the West Yorkshire ICS or those working in Advancing Practice in West Yorkshire. 

Aortic Dissection Charitable Trust cardiothoracic ED teams

SCTS Annual Meeting 2022

8th-10th May 2022 | Belfast International Conference & Convention Centre

The Aortic Dissection Charitable Trust working with the NHS to improve aortic dissection outcomes for patients

Aortic Dissection Education Day: East Kent Hospitals University

20th May 2022 | East Kent Hospitals University

Aortic dissection education event covering epidemiology, pathophysiology, diagnosis challenges and misconception, radiology, POCUS, management, transfer and treatment.

Bereaved families and survivors will also share their personal perspectives and experiences of the aortic dissection treatment pathway. The session will close following an open professional discussion and Q&A.

Aortic Dissection Charitable Trust cardiothoracic ED teams

PCCS 2nd Spring Conference

26th May 2022 | The King’s Fund, London

The Aortic Dissection Charitable Trust presents a completing case study on Thoracic Aortic Dissection. Continuing to tackle the #AortaEd gap in primary care to forge better outcomes for aortic patients.
Aortic Dissection Charitable Trust cardiothoracic ED teams

Acute aortic dissection: Diagnosis and initial management. Study Day

7th June 2022 | Royal College of Emergency Medicine

This study day, hosted by The Royal College of Emergency Medicine, will look at the challenges of making the diagnosis of acute aortic dissection, new approaches to diagnosis and initial management once the diagnosis is made.

RCEM accredited for CPD

Aortic Dissection Charitable Trust cardiothoracic ED teams

Aortic dissection pathway and emerging concepts

17th June 2022 | Royal Society of Medicine

A session highlighting the challenges in the treatment pathway of acute aortic syndromes from a range of internationally renowned experts.

It includes learning about the diagnostic challenges in the emergency department, along with exploring the range of therapeutic options for ascending and descending thoracic aortic dissection including genetic assessment and surveillance.

Aortic Dissection Charitable Trust cardiothoracic ED teams

Aorta: Structure to Rupture

24th June 2022 | School of Engineering, University of Liverpool

This interdisciplinary meeting brings together clinicians, engineers and life scientists to explore the latest thinking in aortic pathology research.

Liverpool Aortic Surgery Symposium IX aortic dissection charity

Liverpool Aortic Surgery Symposium IX

25th & 26th June 2022 | Arena and Convention Centre, Liverpool

The ninth biennial Aortic Surgery Symposium in Liverpool covers important areas in aortic pathology and advances in surgical and endovascular management.

EMAS First Responders Aorta Education

22nd July 2022 

East Midlands Ambulance Service Community First Responders aortic dissection education event covering an overview of the condition, key facts, symptoms, assessment and management.

Aortic Dissection Charitable Trust cardiothoracic ED teams

Hull University Teaching Hospitals NHS Trust

12th August 2022

Aortic dissection education event for Hull’s Emergency Department, sharing an understanding of acute aortic dissection presentation, symptoms, triage, the common misdiagnosis, handover, radiology and treatment. With expert presentations by patients, family members and medical professionals.

The session will close following an open professional discussion and Q&A. 

The Royal College of Surgeons in Ireland aortic dissection education event

Aortic Dissection Awareness Event

Irish Aortic Dissection Symposium

2nd September 2022 | Royal College of Surgeons in Ireland

A free, CPD accredited event covering aortic dissection diagnosis and treatment aimed at Emergency Physicians, Cardiothoracic Surgeons and Cardiologists exploring aortic dissection diagnosis and subsequent surgical treatment options through a mixture of lectures, simulation, the patient perspective, wetlabs and expert panel discussion.

Cathereine UK-AS 2021

Aortic Dissection Awareness Event

9th Annual Meeting Of UK Aortic Society

3rd September 2022 | The Belfry, Sutton Coldfield

Discussions and presentations to include:

  • challenge and key decision during aortic surgery
  • tackling aortic emergencies on the front line
  • the future for complex aortic management

Aortic Dissection Awareness Event

West Yorkshire Health and Care Partnership, ACP Education

9th September 2022  | Virtual

West Yorkshire Faculty of Advancing Practice in conjunction with the Aortic Dissection Charitable Trust would like to invite you to an online Learning Event to explore Aortic Dissection. Guests will talk about the Aortic Dissection Charitable Trust, the pathophysiology of the condition, signs & symptoms, and acute & long-term care.

Aortic Dissection Awareness Event

NHS AAD Toolkit Implementation – London Region

9th September 2022  | St Bart’s Hospital, London

Aortic Dissection Spurs Legends

Aortic Dissection Awareness Event

An Evening with Spurs Legends

16th September 2022  | The Blake Hall, Bridgwater

Did you have these three Lilywhites Legends in your Panini collection? As part of Aortic Dissection Awareness 2022, we are excited to announce this charity fundraiser evening with Ossie Ardiles, Ricky Villa and Stevie P.  Tickets are available in advance.

Aortic Dissection Spurs Legends September 2022
The Aortic Dissection Charitable Trust

Aortic Dissection Awareness Event

The Importance of Aortic Dissection Research

26th September 2022 | Virtual

On the 26th, a week after the September 19th Aortic Dissection Awareness Day we announce our three successful research grant projects. Join to hear the research focus areas and how you can be involved.

Introduced by two powerhouses of AD patient advocacy, treatment & care. Timo Söderlund, Founder of The Global Aortic Dissection Awareness Day and John Elefteriades William W.L. Glenn Professor of Surgery (Cardiothoracic) at Yale University.

AD research UK 2022
Aortic Dissection Charitable Trust cardiothoracic ED teams

Aortic Dissection Awareness Event

Addressing the CVD Gap in Primary Care

29th-30th September 2022 | Virtual

Forum for the presentation and discussion of many varied aspects of cardiovascular disease including hypertension, heart valve disease, peripheral arterial disease and more.

The Aortic Dissection Charitable Trust working with the NHS to improve aortic dissection outcomes for patients

South Warwickshire NHS Foundation Trust

13th October 2022 | Virtual

Aortic Dissection NHS education session. Speakers include:

  • Natalie Barber, ACP, South Warwickshire NHS Foundation Trust
  • Steve Goodacre, Professor of Emergency Medicine, The University of Sheffield
  • Valerie Lechenne, Aortic Dissection Patient
  • Syed Sadeque, Consultant Cardiac Surgeon, Sheffield Teaching Hospitals NHS Foundation Trust

Paramedic Science Undergraduate Module

14th October 2022  | Swansea University

This aortic dissection learning module for paramedic students provides an introduction to the topic as well as information about the disease, its causes, symptoms, and treatment options.

Aortic Dissection Charitable Trust cardiothoracic ED teams

The European Emergency Medicine Congress #EUSEM22

16th-19th October 2022 | CityCube Berlin, Germany

The European Emergency Medicine Congress is a flagship annual event for healthcare professionals working in emergency medicine. The congress attracts over 3000 Emergency Medicine specialists from around the world. We look forward to presenting at this year’s congress.

The AD sessions cover:

  • Patient-centred research, education and engagement in emergency medicine
  • Epidemiology and pathophysiology
  • Characteristics of patients with delayed diagnosis
  • New approaches to diagnoses

SCTS National Research Meeting 2022

National Research Meeting 2022

4th November 2022 | Society for Cardiothoracic Surgery 

The SCTS NRM is the conference for those leading cardiothoracic surgical research in the UK and Ireland, including surgeons, anaesthetists, trainees, clinical and research fellows, allied healthcare professionals, junior doctors and medical students. Sessions include a Research Think Tank and how TADCT supports research activities through funding and PPI.

Royal College of Physicians and Surgeons of Glasgow working to improve aortic care

Scottish Aortic Dissection Symposium

18th November 2022 | Royal College of Physicians and Surgeons of Glasgow

A free, CPD (4.5 hrs) accredited event covering aortic dissection diagnosis and treatment aimed at Paramedics, Emergency Physicians, Cardiothoracic Surgeons and Cardiologists exploring aortic dissection diagnosis and subsequent surgical treatment options through a mixture of lectures, the patient perspective, wetlabs and expert panel discussion.

Aortic Dissection NHS Toolkit Implementation

NHS England Medical Directorate Awayday

23rd November 2022

Catherine Fowler BCAh, charity trustee and a long-time advocate for improved aortic dissection diagnosis and treatment, presents on the topic of empowering the voice of patients and families to Professor Stephen Powis, the National Medical Director of NHS England, along with other senior members of the National Senior NHS Medical Directorate. This presentation discusses how the charity integrated the patient and public voice partners (PPVs) and persons with lived experience in the acute aortic dissection NHS toolkit development process.

Welsh Health Specialised Services Committee Aortic Dissection

South Wales Aortovascular Workshop

2nd December 2022

The Welsh Health Specialised Services Committee (WHSSC) is hosting a workshop with the aortic dissection charity, colleagues from Cardiff and Vale University Health Board, and Swansea Bay University Health Board to further strengthen aortovascular services in South Wales following a GIRFT evaluation of cardiac surgery services in South Wales in 2021.

Royal College of Physicians aortic dissection update

Acute Aortic Dissection for Physicians

7th December 2022 | Royal College of Physicians, London

This one-day RCP meeting will provide physicians with an update on acute aortic dissection. This physician-led seminar aims to enhance the detection of acute aortic dissection in acute care settings, as well as to review the principles of the ESC aortic disorders guideline (2014).

Experts and allied health workers of all levels and from all medical specialities gather to hear from renowned physicians in their fields, participate in Q&A sessions, and network with their peers.

Welsh Ambulance Service NHS Trust aortic dissection

Welsh Ambulance Service NHS Trust

9th December 2022

This paramedic aorta education session is led by Martin Mulholland, Senior Clinical Education and Development Lead at the Welsh Ambulance Service, with assistance and input from the charity. Essential EMT training, encompassing pathophysiology, presentation, initial management, and treatment. With contributions from prominent paramedics, surgeons, patients, and families.

Westminster Hall UK parliament aortic dissection debate

Aortic Dissection Pathways & Research Debate

13th December 2022 | Westminster Hall, Palace of Westminster

A historic day for those affected by aortic dissection as the UK parliament holds its first debate on securing research funding and improving patient care for this serious condition.

We have been campaigning for better treatment choices for people with aortic dissection for the past seven years, and this debate in parliament is a significant step in that direction.

As part of progress toward securing research funding and improving patient care, it has been vitally important that all the voices of those directly affected by aortic dissection are heard in this important debate. We a proud to have representation from patients, bereaved families, and medical professionals who have first-hand experience with this condition. This will help to ensure that the decisions made in parliament are informed by those who are most impacted by aortic dissection.

Aortic Dissection Awareness, Malaysia

Aortic Dissection Symposium Malaysia

14th-15th December 2022 | Borneo Convention Centre Kuching Sarawak, Malaysia

Following the impact TADCT has had on aortic education, awareness, and policy change in England, Wales, Scotland, Northern Ireland, and the Republic of Ireland, the Ministry of Health Malaysia, the Malaysian Association for Thoracic and Cardiovascular Surgery and the Royal College of Surgeons of Edinburgh have invited the charity to present lessons learned on uniting patients and healthcare professionals in making real aortic dissection change.

One Not To Miss: Aortic Dissection

10th January 2023 |  20:00 UK |  Virtual

This webinar by Professor of Emergency Medicine at Edinburgh University Matt Reed, ‘Acute Aortic Dissection for the Prehospital and Emergency Department Clinician’ will cover the epidemiology, pathology, and presenting symptoms of Acute Aortic Dissection. Discussing why the diagnosis is frequently missed, how we might improve, which presenting symptoms are useful (and which are not), and conclude with an overview of the research around risk scores and biomarkers.

How you can help

We are always looking for people to volunteer and support our charity. Find out how you can help and engage with The Aortic Dissection Charitable Trustt

In Collaboration With

The Aortic Dissection Charitable Trust
Registered charity in the UK No. 1191420
Registered charity in Scotland No. SC051517

PO Box 812, Hope Valley, Chesterfield S40 9QY

© 2024 All Rights Reserved

The information and materials on this site are for general information purposes only. This site is not designed to provide individual medical advice, diagnosis or treatment. If you have any concerns, please speak to your GP. If you believe you have a medical emergency, call 999 immediately.

The information and materials on this site are for general information purposes only. This site is not designed to provide individual medical advice, diagnosis or treatment. If you have any concerns, please speak to your GP. If you believe you have a medical emergency, call 999 immediately.

The Aortic Dissection Charitable Trust
Registered charity in the UK No. 1191420
Registered charity in Scotland No. SC051517
PO Box 812, Hope Valley, Chesterfield S40 9QY
© 2024 All Rights Reserved

The Aortic Dissection Charitable Trust

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