Rachel’s interview on BBC Tees highlights the life saving importance of understanding inherited risk and speaking up about family history of aortic disease.
Aortic Dissection Community Outreach
The Aortic Dissection Charitable Trust fosters understanding through outreach events, uniting and educating communities while supporting those affected.
What a Month of Marathons
A powerful month of running saw supporters honour loved ones, raise awareness of aortic dissection, and fund vital patient support and research.
Cycling from France to Japan for Aortic Dissection
A 20,000km, nine-month cycling journey from Chamonix to Tokyo is underway, raising vital awareness of aortic dissection after a devastating family loss.
Supporting Families with Aortopathy
GOSH Aortopathy Family Day and practical guidance on how parents can talk openly and confidently to children about inherited aortic conditions and genetic testing.
Women are Underdiagnosed, Underrepresented and Undertreated
Help shape the future of women’s cardiovascular health by sharing your experiences in a national research survey.
Trustee Awarded Honorary Doctorate
Pauline Latham OBE HonDUniv has been awarded an Honorary Doctorate for her tireless work in public service and aortic dissection advocacy.
Judge Jules Plays a Night for Zac
A powerful tribute night raising urgent awareness of aortic dissection, inspired by Zac’s story and the fight to save lives through early diagnosis.
Aortic Dissection Awareness Day 2025
This September brought major advances in research, patient support, clinical education, and community led awareness.
Turning Awareness into Action
David Burgess’s sudden death from aortic dissection highlights the urgent need for awareness, early diagnosis, and dedicated support for families.
Placing PPI at the Centre of Aortic Dissection Research
This pioneering project put patient voices at the centre of research into life after aortic dissection, with a focus on sex-specific outcomes and recovery.
Artivion Supporting Patient Aftercare
Eighteen surgeons cycle across Mallorca to raise £20,000 for vital long-term care for aortic dissection patients.
Climbing Mountains for Aortic Dissection
Supporters climb the UK’s highest peaks to raise awareness, honour lives affected by aortic dissection, and fund essential medical research.
Supporters Who Go the Extra Mile for Aortic Dissection
From charity runs to tribute events and wedding donations, our supporters show there are countless ways to help raise awareness of aortic dissection.
Celebrating The Marfan Community
The Marfan syndrome community unites to share stories, raise awareness, and support those living with this genetic condition.
The Science Behind Repairing the Aorta
Biomedical engineers and surgeons use advanced materials to repair aortic dissections, showcasing the science behind life-saving treatments.
Aortic Dissection Charity Ball Raises £40,000
The Aortic Dissection Charity Ball at Pride Park brought together 180 guests to honour Ben Latham and raise funds for aortic dissection.
Aortic Dissection Awareness Day 2024
September marked significant progress in aortic disease awareness, with innovative outreach, collaborative events, and groundbreaking research driving early diagnosis and improved care.
A Community United Raises Over £80,000
Our dedicated supporters have come together to raise vital funds for aortic dissection research, advancing life-saving diagnosis and treatment efforts.
Celebrating Emily’s BBC Make A Difference Award
Emily Mickelborough has spoken to thousands, raising crucial awareness of aortic dissection through her year-long fundraising journey.
Like-minded Charities Host Marfan Symposium
The Marfan International Patient Symposium in London united patients, families, and experts to advance advocacy and improve lives with genetic conditions.
A 630-Mile Challenge for Aortic Dissection
Martin Hilton, an aortic dissection survivor, embarks on a 630-mile hike to raise awareness and funds for vital research alongside his wife, Fiona.