Sharon’s tragic story highlights the urgent need for greater awareness and improved treatment pathways for Loeys-Dietz Syndrome.
Aortic Dissection Patient Stories
The Aortic Dissection Charitable Trust is dedicated to sharing patient stories, offering a platform for individuals affected by aortic dissection to share their experiences and journeys. These stories provide valuable insights and foster a deeper understanding of the challenges faced by patients, which in turn helps to educate the public and healthcare professionals. By amplifying these personal narratives, the Trust aims to raise awareness and encourage improvements in patient care and support across the UK and Ireland.
Aortic Nurses Symposium 2024
Bringing together patients, nurses, and healthcare professionals to explore the vital role of aortic nurses. The event featured moving personal stories, expert-led sessions on aortic care and valuable networking opportunities.
Solo Kayak UK Challenge for Aortic Dissection
Driven by personal loss, Michael Lambert sets out on an ambitious solo kayak journey around the UK. His mission: to break a Guinness World Record and spotlight the critical need for aortic dissection awareness and research.
Remembering Kentaro Miura
Kentaro Miura, the creator of “Berserk,” tragically passed away from aortic dissection, a stark reminder of human vulnerability. His profound impact on manga through intricate storytelling and detailed art lives on.
Aortic Dissection and the Healing Power of Poetry
David Attree’s journey through aortic dissection reveals the transformative power of poetry in facing life’s gravest challenges, inspiring resilience and hope.
In Memory of Sharon Sewell. A Champion of Compassion and Courage
We are deeply saddened by the loss of Sharon Sewell, a true champion of compassion and courage. Her dedication to the aortic dissection community and her remarkable journey of resilience have touched us all.
Miracle Running for Aortic Awareness
Emily takes on the London Landmarks Half Marathon with Miracle the Unicorn as part of a year long challenge, for aortic dissection awareness.
The Silent Why: Navigating Loss with Purpose
Catherine Fowler and Dr John Cronin share transformative insights on aortic dissection, highlighting the power of collaborative efforts in emergency medicine and the journey through grief.
The Importance of Patient Safety
Engaging patients and their families is essential for preventing misdiagnoses, especially for severe conditions like aortic dissection that could result in fatal outcomes.
Pauline Latham MP on BBC Politics
MP Pauline Latham’s retirement marks the beginning of her intensified efforts towards aortic dissection advocacy.
A Night of Resilience and Revelry: “Alive!” Triumphs at Rockwater, Hove
Under the stars, the echoes of laughter mixed with stories of survival reminded us of life’s precious rhythm and the pure joy of being part of it.